Duchenne is the most common muscle disease in children. One in every 3,500 boys born worldwide will be afflicted with Duchenne. It progressively robs these boys of their ability to move and cuts their lives short, just before these young men make their mark on the world.
Cure Duchenne is a charity established in 2003. It was founded by Paul and Debra Miller whose son was diagnosed with Dmd in November 2002. Paul is a vice-president of a food company and Debra was in advertising sales before giving up her career to be a stay-at-home mom. Paul and Debra are confident that their business backgrounds will enable them to effectively communicate the need for awareness and funding for Duchenne muscular dystrophy.
“When we got our son’s diagnosis, the pain was unbelievable. We always had faith, but we never truly knew how much we would have to rely on it. We respect and...
Cure Duchenne is a charity established in 2003. It was founded by Paul and Debra Miller whose son was diagnosed with Dmd in November 2002. Paul is a vice-president of a food company and Debra was in advertising sales before giving up her career to be a stay-at-home mom. Paul and Debra are confident that their business backgrounds will enable them to effectively communicate the need for awareness and funding for Duchenne muscular dystrophy.
“When we got our son’s diagnosis, the pain was unbelievable. We always had faith, but we never truly knew how much we would have to rely on it. We respect and...
- 4/14/2023
- Look to the Stars
A 35-year-old mother of three is crediting her faith as the reason she miraculously survived stage 4 brain cancer a decade ago after being told she had days to live.
A month into her first pregnancy, Ashley Hallford of Douglasville, Georgia, felt a knot in the back of her head that became hard and painful.
“I actually discovered right before I got pregnant,” she told Atlanta’s 11 Alive. “But I wrote it off to be a lymph node because it didn’t really hurt.”
But as the pain worsened, so did her symptoms. By the time she was 32 weeks pregnant, she...
A month into her first pregnancy, Ashley Hallford of Douglasville, Georgia, felt a knot in the back of her head that became hard and painful.
“I actually discovered right before I got pregnant,” she told Atlanta’s 11 Alive. “But I wrote it off to be a lymph node because it didn’t really hurt.”
But as the pain worsened, so did her symptoms. By the time she was 32 weeks pregnant, she...
- 3/17/2017
- by Caitlin Keating
- PEOPLE.com
When Charaine Woods's son was diagnosed with Duchenne muscular dystrophy, a rare and fatal muscle disorder, it was the first of many heartbreaks. At each appointment with an occupational therapist to help her 9-year-old son Damon cope with the disease that weakens muscles until sufferers lose the ability to walk and breathe, ultimately proving fatal in the early 20s, Woods was faced with concrete evidence of his rapid decline. "Each time the doctor would say how much weaker he was getting. It was just like getting the diagnosis over and over again," the San Diego Heights, California, mom tells People of her son's appointments.
- 1/2/2016
- by Tiare Dunlap, @tiaredunlap
- PEOPLE.com
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